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Around the Dinner Table - Parents of ED Children > Forums > 2006 posts > Other Obsessions
 
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Pam
    Dec 12, 2006 at 09:44 AM
Reply with quote#1

Hi,

I know this forum is mainly about re-feeding, but I just wondered if anyone else her has had this situation.

As I`ve mentioned before my daughter has had AN for three years now, she`s spent a total of 12 months of that as an in-patient.

The past few months she has become obsessed with the shape of her nose. She says she thinks that`s why she keeps relapsing with the AN because her nose depresses her so much.

Now to me she has a perfectly normal nose, but it really is becoming a problem for her, she won`t go out and she sits with her hands over her face constantly. She has even self-harmed because she hates herself so much.

Her psychiatrist says it may be a way of diverting our attention away from the anorexia, or that she has just convinced herself that this is why she got anorexia in the first place. He says that even if something was done about it then she probably would move onto something else. 

My daughter is certainly not a vain person, so I don`t think it`s about her wanting to be perfect, I really believe that in her mind her nose is a problem to her. I really feel like looking into doing something about it just to take the anguish away from her even if it is part of her anorexia.

Does anyone else have someone with AN who became obsessed with something else, and if so what do you think I should do about it?

 

Regards Pam

 

Laura
    Dec 12, 2006 at 10:03 AM
Reply with quote#2

Pam,

 

Rarely do I feel like one book recommendation could change a life but I suspect this one may:

 

"The Broken Mirror" describes EXACTLY what you are experiencing with your daughter. Body Dysmorphic Disorder is a real phenomenon, and it can be debilitating. She isn't exaggerating her feelings about this, she probably actually SEES this distortion in the mirror. Literally.

 

It is also TREATABLE.

 

http://www.amazon.com/Broken-Mirror-Understanding-Treating-Dysmorphic/dp/0195083172

 

I happen to think we are seeing a similar if not identical issue with the body image distortions in EDs - especially during refeeding - but time will tell. The book is compassionate, well-written, and practical.

tryingmom
    Dec 12, 2006 at 09:13 PM
Reply with quote#3

We're close to a healthy weight and struggling a lot with this issue, both in terms of overall appearance including facial (belief that she's ugly even though strangers say she's gorgeous) and perception of fat where there isn't any (which I realize is anorexia, but it all seems interrelated). I'm reading the Secret Language of Eating Disorders and it seems to fit pretty well with the kind of thinking that my d has.

Tryingmom
Trisha
    Dec 12, 2006 at 11:30 PM
Reply with quote#4

Hi Pam,

 

           Anorexia does certainly change the appearance of the face temporarily, and there is enough bone loss to actually let the teeth go out of alignment as the bone mass of the jaw decreases  The mandible (upper jaw) supports the bridge of the nose, and as it loses some of its mass the profile of the nose may change.  This will reverse itself  with recovery, although the teeth may require braces for full realignment.  In addition, numerous scholarly nutritional  articles refer to dysperception syndromes resulting from deficiencies of zinc, B complex vitamins, glucose, etc.

 

           Chances are your daughter will feel fine about her nose again when she is fully recovered, if she liked it before she became ill.  Meanwhile, it is very sad that she is suffering so much over it.  Have you tried explaining that parts of the body grow at different rates during adolescence, and that sometimes it takes a few years for them all to come together beautifully?  We felt that it was very important to get our daughter's mind off her appearance during recovery and turn her attention outward toward all of the other wonderful and exciting things life has to offer.  The more we exposed her to engaging events and activities , the less she obsessed about food and appearance and the more eager she became to recover and get back in the game of life.

 

             If  you try everything you can to dissuade her from worrying about her nose, and she still continues to suffer over it, you might consider telling her that when she is recovered and finished growing, if she is still unhappy, you will take her for a consultation  with a plastic surgeon.  Others may want to comment on this too-it is a tough call.  I had one friend when I was growing up who absolutely could not be happy until she had her nose reshaped, and was totally happy once it was done at age l6 or 17.  Her nose was perfectly fine with everyone else, but it was not the nose she wanted.  She was not vain either, she just visualized herself with a more classic nose, which was fairly easy to attain.

 

                                Best regards,   

 

                                                           Trisha

 

 

Jane
    Dec 13, 2006 at 07:52 AM
Reply with quote#5

Hi Pam,
Sorry to hear that your daughter is having such a hard time. Regarding advice telling your d you'll take her for a plastic surgery consultation when she is older--I'd be worried that would feed into her obession (she might think you agreed something was wrong with her nose).  Plastic surgery does not usually help BDD.
Quote:
Psychosomatics. 2005 Nov-Dec;46(6):549-55.

Nonpsychiatric medical treatment of body dysmorphic disorder.

Department of Psychiatry, University of Pesnnsylvania School of Medicine, Philadelphia, and the Department of Psychiatry and Human Behavior, Butler Hospital, Providence, RI 02906, USA.

Many individuals with body dysmorphic disorder seek nonpsychiatric medical and surgical treatment to improve perceived defects in their physical appearance. However, the types of treatments sought and received, as well as the treatment outcome, have received little investigation. This study describes the frequency, types, and outcomes of treatments sought and received by 200 individuals with body dysmorphic disorder. Treatment was sought by 71.0% and received by 64.0%. Dermatological treatment was most frequently sought and received (most often, topical acne agents), followed by surgery (most often, rhinoplasty). Twelve percent of the subjects received isotretinoin. Such treatment rarely improved body dysmorphic disorder. Thus, nonpsychiatric medical treatments do not appear effective in its treatment.


Cheforexic
    Dec 14, 2006 at 07:37 AM
Reply with quote#6

Pam,

Though men and women of good will and conscience can disagree on this, I would NEVER suggest any sort of plastic surgery to ANYONE unless they had suffered some horribly disfiguring accident or been born with some grossly anomalous disfigurement.

Obsession over minor points of appearance is not healthy and is a distraction from the things in life that are truly meaningful. As parents, this is a lesson we cannot emphasize enough for our children.  I would go so far as to say it's a gift that we give them.  Taking a value or supportive position on plastic surgery as a way to tune up one's looks is giving the completely wrong message to our children.

cheforexic

Laura
    Dec 14, 2006 at 08:05 AM
Reply with quote#7

I must confess, I was so upset yesterday when I read your suggestion, Trisha, that I was unable to respond.

 

Let me go on record to say that it is deeply offensive to me that anyone, especially a trusted authority figure, would even discuss plastic surgery in this situation.

 

The problem is not the nose, any more than an eating disorder is about a rational fear of obesity. You cannot talk someone out of a hallucination, nor should you offer comfort in the form of collusion with the illness.

 

Self esteem and body image are complex things, but they have zero to do with how you actually look. Engaging in debate with the sufferer about the actual appearance is fruitless, and potentially dangerous. The sufferer deserves comfort, support, listening, and good clinicians to work on the cognitions and often on the brain chemistry.

ripley
    Dec 14, 2006 at 08:48 AM
Reply with quote#8

Another book on BDD that my daughter's dr. recommended was The Body Image Workbook by Thomas Cash. My d never wanted to read it (or any other e.d. articles or workbooks for that matter) but it might be helpful to someone else here.

Trisha
    Dec 14, 2006 at 08:49 AM
Reply with quote#9

Not having seen the nose we are discussing, it is hard to say if the child has a valid concern or not. You'll notice that I only suggested consultation-not actual surgery. A reputable plastic surgeon will tell you and her that she's fine if she is. What about braces-do you think everyone should live with misaligned teeth or micrognathia because they were born that way? Supporting your child's natural appearance is of course very critical within reason, but if for instance a child is being tormented incessantly at school over a particular feature it's a lot easier for parents to tell them it looks fine than to get them to believe it. Sometimes an expert opinion is in order.  How about an orthodontist visit, since that's generally something that parent's feel fine about?  Even if she has already had braces, you can discuss her profile with the orthodontist (without her there, first, to be sure you want to share the discussion with her). Braces probably wouldn't be wise while she's still sick, but the doctor may have suggestions for treatment that can adjust her profile after she recovers.

                    

                                                           Trisha

lwm
    Dec 14, 2006 at 09:08 AM
Reply with quote#10

All of this is a red herring. We can debate various obsessions ad nauseum--whether or not moving to a particular place would help, or plastic surgery, or parents getting back together, or a new puppy, etc. Obsessiveness on a variety of topics is a symptom/byproduct of starvation. Anorexia speaks the language of obsession and those obsessions can take various forms. It's our job as parents and rational people to see through these to the real issue: malnourishment.

--lwm
Jane
    Dec 14, 2006 at 09:10 AM
Reply with quote#11

Trisha,
We haven't seen her nose but her mother has and says it's "perfectly normal".  There's no mention that Pam's daughter is teased at all.  Clearly the girl's distress is quite severe.  She won't go out and covers her face in her hands.  She  is suffering and needs help.  The evidence from studies is quite clear that surgery does not help BDD.  There are treatments for the disorder and I think Laura's book recommendation is a great one. And I can't understand the recommendation for braces since there was no suggestion that the girl, her dentist or anyone else has concerns about her teeth or  "adjusting her profile". I can't imagine why anyone would suggest such a thing.


Margaret
    Dec 14, 2006 at 10:37 AM
Reply with quote#12

Plastic surgery side footnote-one of my Mom's friend's kids had plastic surgery in her teens, then developed very different interests and went to a liberal college (Evergreen, in WA) where she decided the plastic surgery was a form of internalized racism (since its most often used to "correct" "ethnic" features)and spent a good deal of time calling her parents "Uncle Toms" and worse for ever allowing her to do anything so horrid to "multilate" herself in order to "look like a WASP".Mom was always like, if you want plastic surgery you'll have to pay for it when you're an adult, I'm not going through that! So my nice Jewish nose is firmly in place to this day. Plastic surgery seems to be a complex issue which might need long and careful thought even in the absence of obvious pathology...

Jane
    Dec 14, 2006 at 01:15 PM
Reply with quote#13

Margaret,
Good for your mom and good for you!

Pam
    Dec 16, 2006 at 11:14 AM
Reply with quote#14

Thanks for your replies. I didn`t mean to start off such a debate about plastic surgery. The fact is I have not discussed this with my daughter, and do my best to convince her that she is a beautiful girl and that there is nothing wrong with her, however the thoughts are locked in her head now, so nothing I say makes any difference.

In answer to some of your questions. She has not been picked on because of her nose, but she does feel that people are constantly judging her, not just her appearance but everything about her.

She has no confidence at all, and nothing anyone says or does seems to help with that. No amount of love or encouragement or praise at the things she does seems to help her.

I just want my daughter to be happy. I know that maybe she never will be, that`s just how she is, but if I could ease her pain even a little then I will do so whatever it takes.

I do agree that even suggesting she sees a consultant may have her thinking that I also think there is something wrong with her appearance, which is why I never do so. (She is actually a very beautiful girl).

I just wish that mental illness could be fixed as easily as it would be to fix a nose, then maybe I`d know why such a beautiful, intelligent girl could possibly have such thoughts about herself.

Thanks again.

Pam  

 

 

Jane
    Dec 16, 2006 at 02:01 PM
Reply with quote#15

Hi Pam,
My d developed a number of obsessions during recovery.  Some were appearance related but others weren't. I think that it's pretty common for kids with AN to develop obsessive worries--academic, social, or appearance related (or all of the above).  My d's distress about her appearance was severe enough that we removed the mirror from her room for a while.  I believe Sam did the same with his daughter (the good news is that Sam's d and mine are both doing well now). It seemed that my daughter's tremendous anxiety found new targets once we were overseeing nutrition. This did improve as she regained her health (physical improvement first, followed my mindset).  It was a long haul but I think your psychiatrist is right--dealing with the AN is the first step.  And I heartily second LWMs
Quote:
Obsessiveness on a variety of topics is a symptom/byproduct of starvation. Anorexia speaks the language of obsession and those obsessions can take various forms. It's our job as parents and rational people to see through these to the real issue: malnourishment.
How's your daughter's health/nutrition status coming along?  Hang in there and have hope. 
Jane
Debra
    Dec 16, 2006 at 03:08 PM
Reply with quote#16

My d is almost at full health (only 2 pounds from her goal of 18.5 BMI), yet she obsesses about lots of things.  She gets VERY anxious about not getting her way and drives us all crazy her her constant arguing.  Then she goes into this 'mode' of agression that frankly, I just can't stand and at that point I tell her I am leaving (then she usually settles down and melts into tears).

 

This is exhausting, and it isn't because she of 'health' because she has been getting all her calories in for the past 4 months and, as I said, is almost at an 18.5 BMI.

 

Will this behavior settle down?  Is it related to the AN, or is just because of 'her'. 

 

I asked her therapist and she said that when facing new challenges, she will experience anxiety and these episodes will come on, but she should be able to find ways to control them.  She said they should lessen, but they have been happening for a long time now (2 months) and I am losing my patience with her.  I was trying to be kind and understanding, but I am ready knock her off her block (so to speak).

 

Anyway, these seem to be fueled by obsessive thoughts and I keep hoping they stop soon.  Any thoughts?

 

Debra

Jane
    Dec 16, 2006 at 03:23 PM
Reply with quote#17

Debra,
Our kids are individuals and I think your best bet is working with the professionals who know your daughter.  That said, in my d's case we found that getting to 100% healthy weight was just step one--her mindset continued to improve for several months.  In general my daughter was comforted when I was able to stay calm and steady when she was upset (and yes, I know it is very hard to do).  Maybe your t can help you think through some strategies for when your d is distressed  and "arguing".  Over time you might find some of your own techniques that help calm or head off these problems.   If you haven't read Nancy Zucker's Off the CUFF manual I'd really recommend it.  It's quite good on this kind of thing and also emphasizes the importance of taking care of yourself. 
Jane

Laura
    Dec 17, 2006 at 08:20 AM
Reply with quote#18

"Almost" at a healthy weight always sounds to me like a drowning person "almost" at the water's surface. Not breathing is still not breathing.

 

Initial refeeding is the first step in regaining physical health, but only the first step.

 

Like an oxygen-starved brain, the brain is damaged when it is starved. Healing takes time, and the amount of time differs according to its condition before it was damaged, and the extent of the damage.

 

In other words, it takes time and work. Just reaching a certain BMI isn't enough.

 

(What troubles me is that most eating disorder treatment doesn't even ensure THAT, or stops there and says: "okay, we've hauled you out of the water, now, swim to shore on your own.")

margaret
    Dec 17, 2006 at 10:43 AM
Reply with quote#19

And the whole BMI thing is so flawed anyway-these one size fit all "healthy" weights look really low to me from my own personal experience. I'm five foot four and a half and quit having a period below 120, don't feel normal at all until I'm over 150. I like to stay about about 175-180 which looks obese on paper, but is IRL very little body fat with my muscle mass. Which I'm very proud of and took lots of cardiac rehab to build (<G>

http://www.msnbc.msn.com/id/14396741/wid/11915773?GT1=8404

If the BMI issue has been beaten to death here perviously as it has on so many other sites, please delete. Thanks!

lwm
    Dec 17, 2006 at 10:46 AM
Reply with quote#20

I couldn't agree with you more, Margaret, which is why it makes me anxious to hear parents putting all their hopes on when their child reaches 18 or 18.5 bmi or whatever.

A child's target weight should be set by medical personnel looking longitudinally at that child's historical growth curve. Any other measure is arbitrary. BMI is only a ratio of height to weight, that's all. Which is why states like Arkansas and Massachusetts, which put BMIs on kids' report cards, are so messed up.

--lwm
nancy
    Dec 18, 2006 at 07:15 AM
Reply with quote#21

Just adding about the BDD thing, it can exist apart from AN/starvation and could possibly trigger dieting depending upon what the body part concern centers on, and so lead into AN (rather than being a consequence of starvation). Of course, starvation seems to trigger these secondary distortions also.  

This is the chicken/egg problem I've had all along with my d's eating disorder and approach to treatment.  She did think her cheeks looked too full before she became eating disordered, but that component actually seemed mild compared to her other oc's with numbers/counting, scrupulosity/ritualizing to offset imagined bad happenings, time obsessions, and more (before AN).

 

 

My son (10) also has ocd, and currently thinks his arms look too big and his legs look too hairy (this is just one of his obsessions-others are not bodily related)  to degree that he absolutely refuses to wear short sleeves or shorts-this was in summer with PE and hot weather. He will soon resume ocd therapy ( halted during my d's crisis)  and I'll get some help, I hope, in getting him into short sleeves and shorts as "exposures".  I feel cautious with him b/c I do feel he is at risk for becoming eating disordered if control of appearance concerns becomes weight related-i.e things like arms being "too big" .To add the malnutrition on top of psychoneurological problems already there, I have learned, is disastrously hard to treat.

 


My oldest d (18) has dealt with bdd over her skin since 6th grade (so there never was any dieting/body image concern) and even developed agoraphobia. She has gotten better and more confident with therapy, part of which has been to  expose her skin without make-up, and with insignificant blemishes (like any teen may have) so on. This can be excruciatingly difficult at beginning though.

Suggesting any kind of laser or dermabrasion or plastic surgery ( regular dermatology and minimal facial regimen is ok) would run comptelely counter to recoginized treatment approaches, it would only reinforce the distortions. We also covered mirrors but eventually uncovering them may be a helpful exposure.


The confusion lies in the fact that "normal" people seek corrective surgery or treatments, BUT without undue severe anxiety prompting them. Seeking dermabrasion surgery etc when one is severely anxious to point of agoraphobic over the appearance concern is a different matter. "Fixing" the concern can become a chronic "fix" or addiction that can be extremely counterproductive. 

 I would agree that a fixation on one's nose could well be a form of BDD in someone predisposed genetically (anxious and perfectionsitic individual) and treatment would likely center upon exposures re her appearance, both real and imagined, and addressing cognitive distortions ( everyone is looking at my nose, no one has a nose like mine etc) all which could make her feel extra anxious and uncomfortable,  until the sense of  "disfigurement" fades away.


Not only can you not suggest corrective surgery to someone with BDD, you often cannot even reassure them that the nose or whatever looks fine, it will just become a trap of reassurance seeking that is only temporarily helpful. It might work better to say that many people have all different size noses and yet are well liked and attractive.

(For the record I have 3 kids without any ocd problems too, I don't know why the other 3 got unlucky, but there is alot of sub-clinical to more severe ocd in both sides of the family).  

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